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The "Out-of-Sync" Child:
Sensory Processing Disorder

BY MEG ZWEIBACK, R.N., M.P.H.

© COPYRIGHT 2008 BY PARENTS' PRESS

Dear Meg,

We have a delightful, high-energy 4-year-old boy. Jacob has always been a handful, but we've never worried that there was anything the matter ­ we just figured that he was one of those kids who had lots of energy and we take that into consideration.

This year, his preschool teacher, who loves him and thinks he's delightful, funny and smart, asked us if we had thought of having him evaluated for "sensory problems." She says that compared to other kids his age, he has more trouble settling down, and that he can't always do some of the fine motor tasks that other kids his age can do.

We don't know if she's being overly cautious, and we're not sure what she is talking about. Is this the new diagnosis for preschoolers who don't always follow the rules, or should we do something?

I don't know whether you need to be worried, but I will say that a preschool teacher who loves your child is someone whose observations should be given weight. At the same time, you may want learn more about what she is noticing so that you can decide on the next best steps.

Why don't you ask her to make a list of the specific behaviors she sees that seem different from other boys his age? (Boys' behavior at this age is often different from that of girls.) Then compare what she tells you to what you see at home and in other settings. That way, you can begin looking at what influences affect Jacob's behavior. Noticing what helps him do well in each setting will be the cornerstone for helping him do even better.

I think that your preschool teacher is describing a relatively new way of thinking about how children respond to different types of sensory input. In the past, we usually only thought about sensory issues with children whose behavior and misbehavior was extreme. Now we realize that children who have very mild variability in their ability to process sensory stimulation can, at times, have difficulty in some situations. We don't want to label or diagnose children unnecessarily, but we do want to help kids who may need a little extra consideration as we plan for their busy days at school and at home. So here's a brief explanation of sensory processing that will help you understand what the teacher is saying to you.

Incidentally,sensory processing problems affect girls as well. In the case of a girl Jacob's age, I'd suggest comparing her behaviors with those of other 4-year-old girls. Again, that's because ­ entirely apart from sensory processing problems ­ boys' and girls' behaviors may differ at this age.

Your Child and Sensory Processing
Everyone learns and acts by using their senses: vision, hearing, touch, balance, spatial awareness. We don't ordinarily notice how we combine sensations ­ we just do it.

Imagine yourself driving a car: You look all around with special attention to what is directly ahead. You listen for unusual noises such as sirens while ignoring ordinary sounds of traffic. You feel your hands on the wheel and your foot on the gas and know how much to turn or press down to get the car to do what you want. You judge space and movement to decide when to merge lanes. All of this happens at the same time, and most of us don't think about it, even though it probably took us a while to integrate all these sensations into our actions.

Sensory processing (sometimes called sensory integration) is the neurological process of organizing the information we get from our bodies and from the world around us for use in daily life. Some sensory processing occurs developmentally; that is, it becomes easier as out brains mature. (That's one reason we don't teach an 8- or 12-year-old to drive!)

Young children gradually develop the ability to organize sensation.
However, some children have more difficulty than others processing and organizing sensations. They have behaviors that are not common for other children their age. A child with difficulties in sensory processing may overreact or underreact to sensory stimulation and behave inappropriately in situations where other children the same age can behave well. The phrase "out of sync" has been used to describe this condition in which a child is not responding in an ordinary way to ordinary sensations.

Most children with sensory processing difficulties are healthy and bright, and have competent parents. Their behavior may seem mysterious to adults. These children must struggle to tolerate ordinary sensations, to plan, organize, and predict their actions, and to regulate their attention and activity levels. They are too young to understand their own behavior, and they cannot learn to manage it well unless the adults around them learn about how to help them.

Although some children will have so many difficulties in their behavior that they should be evaluated at a very young age and get special treatment, many others have very mild symptoms in only a few areas, and the issue of sensory processing may not even be considered.

Parents often figure out how to begin helping a child on their own and see great improvement. They learn to modify the environment and expectations to help their child succeed. The first steps always begin at home, since parents are the ones who see the child in many situations and are often far more aware of the range of behaviors that others see only sporadically.

These are the areas to think about in understanding your child's responses to sensation:

Hypo and hypersensitivity. A child can be undersensitive (hypo) or oversensitive (hyper) or a combination of the two. Fatigue and hunger will worsen any child's ability to process sensation, but the hyposensitive child may not feel hungry or tired until he's starving or exhausted.

Movement. A child who is hyposensitive will seek more stimulation in this area. Running, climbing, swinging, rocking ­ all will be present, and can be nonstop. The child may be a risk-taker because of the need to push himself. "Daredevil" behavior is common. However, the child may be able to sit and focus very well, so the perception of "hyperactivity" as in ADHD doesn't fit.

In contrast, the hypersensitive child may be bothered by any activity that requires lots of movement or gross motor skills. He may get very anxious about being in a situation where other children are jumping, running, and climbing happily.

Touch. The hyposensitive child may be unaware of pain, temperature, or how an object feels, and may seek more stimulation by chewing, tasting or rubbing an object. He may overstuff his mouth while eating and then gag on his food. He may want to touch and manipulate everything he sees. He may love wrestling and tickling and seek out these activities even when they are inappropriate.

Meanwhile, a child who is hypersensitive may be unable to handle touch from others and may be upset by feeling certain textures of clothing or food. Labels on clothing, tight shoes, or heavy jackets may upset him. Pain may cause dramatic reactions and lead to fears or phobias. The child may be extremely resistant to washing his hair or face and may shrink from hugs or tickling.

A child may have both over- and under-reactions, or he may be different on different days. (Since all young children learn by touch and handling more than by listening or watching, this characteristic may be developmental.)

Proprioception. This unfamiliar word means the ability to perceive one's own position ­ the unconscious sensation of body movement necessary to balance, walk through a group of people, avoid bumping into walls and furniture. This can apply to large and small motor activities. A child with difficulty in this area may bump into objects or people, break toys with rough handling, or throw objects too hard. He may be unable to master the twisting or stacking of small objects. He may be awkward or clumsy. The child may kick or stomp to figure out where he is in relation to furniture and floors. Manipulating objects may be difficult because the feedback for the right amount of pressure to use doesn't register.

Vision. A child may be hyposensitive and need to touch objects to supplement his sight, even though his vision tests fine. In contrast, the hypersensitive child will be distracted or bothered by light, may dislike bright colors, and may avoid looking at people's faces or making eye contact. An overly sensitive child may need a completely dark room to be able to sleep.

Smell/taste. A hyposensitive child will be unaware of bad odors. He may not be fussy about the taste of most food, although textures can still be a problem. He may crave certain tastes ­ sweet and salty especially ­ to get the stimulation he seeks. Meanwhile, the hypersensitive child will notice differences in foods and may be extremely discriminating and fussy about what he will or won't eat.

Sounds. The hyposensitive child will seek out loud noises, while a hypersensitive one will be bothered by loud noises and may be distracted by or avoid noise that others don't notice at all. He may put his hands over his ears and cry when he doesn't like certain music or the noise of a crowd.

Self-regulation. A child may be unable to calm himself once he is aroused. Other children may be able to get excited and wild and then return to quiet behavior, but a child with difficulty in this area will keep going. He doesn't appear to be defiant or trying to test limits ­ he just can't stop unless an adult helps him calm down.

Because these sensory problems are confusing and unpredictable, parents and teachers may react to the child as if the behavior was intentional, and the primary response may occur after the misbehavior. Since the child can't predict or control his behavior without help before the situation occurs, the child and the adults will be frustrated and probably angry. Because of this pattern, the child with these sensory issues may be seen as having psychological problems or Attention Deficit Disorder (ADD/ADHD). Parents may be labeled as poor disciplinarians who are "unable to control their child."

Finding Ways to Help
There are many ways to help children who have difficulty processing sensations. The first step for parents is to observe their child in a variety of settings and to notice when their child is doing well. What is happening then? Most parents will begin to see a relationship between environmental situations and the kind of behavior they want to encourage and discourage. Those observations point the way for the next steps.

Many children will be helped by a combination of a modified environment, planning and preparing for challenging situations, and learning self-soothing skills. If the area of sensory difficulty is small and parents and teachers tune in to these issues, the child will develop good coping skills and do very well. If a child's sensory issues are more complex, it will help to have an evaluation by an occupational therapist who has training in sensory processing.

Treatment, whether it's mainly home and school-based or provided with the assistance of an occupational therapist, helps the child process all the senses so they can work together. Treatment helps the child balance and integrate the "near senses" ­ the vestibular sense (inner ear) which processes information on movement, gravity, and balance; the tactile sense (skin) which processes touch; the proprioceptive sense (muscles, joints) which processes information about body position and body parts ­ and the "far senses" (smell, taste, touch, sight, and sound).

Many of the treatment activities are simply fun, and parents will enjoy working with their child. These activities might include water play, drawing in sand, using play dough and finger paints, making music, blowing bubbles, gentle petting of stuffed animals or pets, swaddling dolls or being swaddled, back rubs, going up and down stairs, pushing and pulling, manipulating small toys and objects, moving through an obstacle course, playground games, balloon games, clapping, and tapping. And, of course, these are all good activities for any child.

Resources
If any of these descriptions sound like your child, you may want to read the excellent book, The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder, Revised Edition by Carol Stock Kranowitz and Lucy Jane Miller (Perigee Trade, 2006, $15.95 paperback). If Jacob's teacher hasn't read the book, get her a copy. (The book describes children who have somewhat complex sensory issues, but many parents will find the descriptions very familiar, even if their own child's behavior is less pronounced.)

A companion book, The Out-of-Sync-Child Has Fun, Revised Edition: Activities for Kids with Sensory Processing Disorder by Carol Stock Kranowitz (Perigee Trade, 2006, $15.95 paperback; also available as a Kindle Book via wireless delivery for $9.99 from www.amazon.com) is also worth reading for practical ideas. Try some of the suggestions, which are worthwhile for all children, and see if the approach works for your child.

Then, if you think it would be helpful to go further, ask the teacher and your child's pediatrician for suggestions about the best places to have Jacob evaluated by an occupational therapist.

For More Information

About.com
Links to lots of information about sensory processing disorder, both pro and con.
http://specialchildren.about.com/
od/sensoryintegration/
bb/dsiresources.htm

American Occupational Therapy Assn., Inc.
P.O. Box 31220
Bethesda, MD 20824-1220
(301) 652-2682
www.aota.org

SPD Foundation
Lots of information, and a search function to find occupational therapists in your community who work with SPD.
www.spdfoundation.net

The SPD Controversy

In the medical community, the jury is still out on sensory processing disorder.
Most medical professionals agree that sensory integration problems do exist; they are often found in children diagnosed with an autistic spectrum disorder, other developmental delays, or attention deficit disorder (ADD/ADHD). The question is whether a cluster of such problems add up to a legitimate "stand-alone" diagnosis or are simply symptoms of other disorders.

The first person to make a case for SPD (originally called sensory integration disorder) was Jean Ayres, an occupational therapist who described it in her 1973 book Sensory Integration and Learning Disorders.

Today, SPD continues to be diagnosed and treated primarily by occupational therapists, licensed professionals who hold a graduate degree. (The American Occupational Therapy Assn. describes OT as assisting people in developing the skills necessary to achieve independence in all aspects of their lives for independent and satisfying lives.)

There is a growing community of parents who feel SPD is the "right" diagnosis for their children's problems. But many medical professional feel there isn't enough well-controlled research to justify recognizing it as a disorder apart from other medical or psychiatric conditions.

SPD is not included in the current edition of the widely used American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders (DSM-IV). As a result, many health insurance companies will not pay for treatment. An APA task force is working on a new edition of the DSM, expected around 2011. Several researchers are advocating for the inclusion of SPD in the new edition.

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